Latest NewsYouth Group - Sign Up Today!Are you between 13-18 years old or 19-28 years old and do you or a family member have Marfan syndrome, Loeys-Dietz syndrome, ACTA2 or a genetic aortic disorders Click here to learn more about joining our new youth group and mentorship program! 2014 CMA Research Grant Program $100,000The Canadian Marfan Association in partnership with The Marfan Foundation is proud to announce the annual Research Grant opportunity for $100,000. Both the Canadian Marfan Association and The Marfan Foundation co-fund the two-year faculty grant. For full details, deadlines, guidelines, and application, click here . Application deadline: April 27, 2014 2013-2014 Holiday Campaign is here! The 2013-2014 Holiday Campaign is here with a special letter from Kenzie McDonald, a young and vibrant young adult who has been diagnosed with both FBN1 and TGFBR2 mutations. Despite her diagnosis, though scary at first, Kenzie shares her story of how she overcomes her obstacles and advocates to others, 'live within the limits, but don't be afraid to live.' more... See more text